A couple months back a news producer from CBS Philadelphia recached out and ask if we would be interested in being interviewed for a telethon to raise support for Alex's Lemonade Stand Foundation. You may recall we have received their support on a couple occasions that I wrote about here, so I was eager to… Continue reading Always a puzzle, never a fairytale.
Tag: pediatric leukemia
Time, you fickle thing.
Sometimes it's hoping the nurse would hurry-up. Sometimes it's wondering why she won't slow down! Sometimes it's wishing the results would yield sooner. Sometimes it's pleading they never yield at all. Sometimes it is staring at your phone waiting for the call. Sometimes it is seeing the collections' phone number and wondering how it's already… Continue reading Time, you fickle thing.
Still… D.O.S. June 7th.
In June 2022, Beau had his port removed. Date of Service June 7th, to be exact. I have that date seared in to my memory because I have said, "Yes, Date of Service June 7th," approximately 387 times in the last year. I wrote about the port removal here and here. (Some of my best… Continue reading Still… D.O.S. June 7th.
The Matriarch.
Hi party people. Turns out, I am not the Supermom. What the heck. I guess it comes as no surprise because after the first round when I realized there were five gazillion more rounds requiring my cheerleading, I knew I wouldn't last. I am just not a cheerleader guys, I'm the problem, it's me. Or… Continue reading The Matriarch.
Nutella flavored medical debt.
You guys out there? You still voting? Honestly, how much longer will this last... well, the email they sent me states that I need to be available end of July for the trip to Palm Springs. Palm Springs in dead of summer. Ohhhh Kayyyy. Hope there's a pool. http://thesupermom.org/2023/betsy-larrabee - A new Costco opened by… Continue reading Nutella flavored medical debt.
Whispering and Times Tables.
I’m backkkkkkkkk. (And a bit all over the place might I say.) You guys, I made it to the, well, what is it now? 483rd round of SuperMom? Honestly, I don’t even know. But now they are calling it the Quarter Finals and I think that actually means something because I dropped from my long-standing… Continue reading Whispering and Times Tables.
HuCAR T: 18 month follow-up- Half Truths and Tug of War.
I wake-up early and sneak out of the dark hotel room. I make my way to the lobby to enjoy the complimentary coffee and read my book. If I position myself just right on the couch in the far corner I can be surrounded so completely with eclectic decor that I almost forget why I… Continue reading HuCAR T: 18 month follow-up- Half Truths and Tug of War.
To the mom who is about to hear, "It's cancer."
There is so much I want to tell you. And really, I don't know exactly where to begin. So, like I'll encourage you from here on out, I am going to just take the next step. Things are about to get hard. Real hard. Like can’t breath, might throw-up, haven’t eaten nor slept in a… Continue reading To the mom who is about to hear, "It's cancer."
The Heavy Wait 