Every post, since the beginning:

Not Everything Helpful Is a Protocol: Red Light Therapy Benefits Explained

Red light therapy lives just outside standard medical protocols, but has quietly become part of our routine. Here’s what it is, what it can and can’t do, and how we…

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March 20, 2026March 20, 2026

Pediatric Cancer Research Funding: Beau’s Birthday and a Broken System

Beaudin turns 14 next month. He is not asking for gifts. He is asking to take lunch to the lab studying the treatment that saved his life – and he…

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March 13, 2026March 31, 2026

Employment During Pediatric Cancer: Josh’s story

Eight years of pediatric cancer treatment. Eight years of Joshua working from plastic hospital chairs, hospital lobbies, and Philadelphia row homes. This one is for him.

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March 5, 2026March 5, 2026

HuCAR T: Month 60 Part 2: Growing Pains

At a 60-month CAR-T follow-up visit, survivorship comes into focus. labs are good, but knee pain raises the quiet realities of long-term chemotherapy side effects in pediatric cancer care.

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March 3, 2026March 9, 2026

HuCAR T: Month 60- Part 1: Everything is different, but nothing has changed.

Last week Beaudin and I traveled to CHOP in Philadelphia for his 60-month post HuCAR T-cell follow-up. Here at home, little of our daily life is entrenched in the bone-deep…

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February 25, 2026March 31, 2026

When Trial Medicine means redefining family

A parent perspective on trial medicine, care team transitions, and why family remains the central source of continuity in pediatric treatment.

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February 5, 2026March 23, 2026

Of Medicine and Miracles: A Documentary About CAR T Therapy

A reflective look at Of Medicine and Miracles, a documentary exploring the development of CAR T-cell therapy and what its long, uncertain path means for families considering CAR T treatment…

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February 3, 2026February 4, 2026

A “Sorry This Sucks” Gift for the Newly Diagnosed with Cancer

A simple, practical gift for someone newly diagnosed with cancer—no platitudes, no inspiration. Just a thoughtful combination of items that make long days and longer nights a little more tolerable.

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February 2, 2026February 2, 2026

5 Books I’d Give to Anyone Facing a Cancer Diagnosis

A cancer diagnosis changes the way language lands. Suddenly, words meant to comfort feel hollow, advice feels sharp, and even hope can feel entirely too loud. When Beau was diagnosed,…

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February 2, 2026February 2, 2026

You are putting what, where? Central Lines, Explained

When your child is newly diagnosed with cancer, information comes at you in a way that doesn’t match the moment you’re in. Everything feels like a dream you haven’t woken…

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January 29, 2026February 2, 2026

Alive in Philadelphia, HuCAR T-1 year follow-up

This is post was originally published in 2022. I looked out the window as the plan began to descend along the Schuylkill. We were now 1 year out from HuCAR…

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January 20, 2026February 1, 2026

Believe Bundle Fundraiser

Ok. Gosh. Stop crying. Some of my favorite posts are the ones I write when I sit down intending to write something else entirely. This was one of those. Surprise:…

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January 13, 2026January 15, 2026

Photo Organization and Why Not To

Happy New Year. I have a method for cleaning out the thousands of photos stored on my iPhone. Each day, I take a moment to search in Photos the current…

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January 13, 2026January 14, 2026

To the Mom Who Is About to Hear “It’s Cancer.” Part 2

Part Two: A letter to the mom standing on the edge of a diagnosis. After the hard comes a slow, unexpected softness—the fragile, holy moments that reshape you in ways…

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December 7, 2025March 2, 2026

For Katie, on her birthday.

A story of friendship forged in the Heavy Wait of pediatric cancer—survival guilt, grief, and the instinct to reach for each other through the hardest seasons.

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December 3, 2025

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Every post, since the beginning:

Not Everything Helpful Is a Protocol: Red Light Therapy Benefits Explained

Pediatric Cancer Research Funding: Beau’s Birthday and a Broken System

Employment During Pediatric Cancer: Josh’s story

HuCAR T: Month 60 Part 2: Growing Pains

HuCAR T: Month 60- Part 1: Everything is different, but nothing has changed.

When Trial Medicine means redefining family

Of Medicine and Miracles: A Documentary About CAR T Therapy

A “Sorry This Sucks” Gift for the Newly Diagnosed with Cancer

5 Books I’d Give to Anyone Facing a Cancer Diagnosis

You are putting what, where? Central Lines, Explained

Alive in Philadelphia, HuCAR T-1 year follow-up

Believe Bundle Fundraiser

Photo Organization and Why Not To

To the Mom Who Is About to Hear “It’s Cancer.” Part 2

For Katie, on her birthday.

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