Every post, since the beginning:

Beaudin L. #1

Beaudin and I waited in line to meet Dr. June. He is one of the brilliant doctors behind CAR T therapy and, as far as Beaudin cares, is a celebrity…

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Preparing for a Ball

I waited until three days before we left for Philly to come to terms with the fact that I would have to find something to wear to my first ever…

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Believe Ball 2022

This weekend we attended the Believe Ball put on by the Emily Whitehead Foundation (EWF). As I have mentioned in previous posts, the EWF is a large part of why…

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Intoxicating Trauma

Sweet Emily, Part One I keep meaning to write about it. The composition swirling around in my head every time I notice something that reminds me of her, of it.…

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HuCART: Month 12 Results

It has been over 500 days since the last time there was measurable cancer in Beaudin’s body. So why doesn’t it feel like butterflies and rainbows to say that he…

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Mozzies

This weekend Selah sat outside all afternoon, playing with her new water beads and was eaten up by mosquitos. I would say “eaten alive,” but I said that in front…

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Verified.

We have to get Beaudin a COVID test for his procedures at CHOP. The procedures can happen, positive or not, but if he is positive they have to provide a…

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Every Damn Day

The other night over dinner a girl friend and I listened while our friend, Sarah, recounted a scary medical thing that had happened with her young daughter earlier that day.…

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Doing the Damn Thing.

We are back from our one-month Pacific Northwest extravaganza. It was everything we hoped it would be, probably more. But above all the hyperbole, it was truly the break we…

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Leben jetzt und hier

It was July 2008. We were young and wild. We stayed past semester end to travel the Adriatic coast, the world our oyster. We debated a tattoo to consecrate the…

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Chemical Sleep and Bon Voyage

The day Beaudin had his port put in, January 19th, 2019 a fellow met us in the surgery waiting room and asked if we would be willing to sign Beau…

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HuCART: Month 9 results

Earlier this month Beaudin and I traveled to CHOP for his 9-month post HuCART testing. It’s been impossible to write about. Not because the trip to Philly was that out…

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