You guys out there? You still voting? Honestly, how much longer will this last... well, the email they sent me states that I need to be available end of July for the trip to Palm Springs. Palm Springs in dead of summer. Ohhhh Kayyyy. Hope there's a pool. http://thesupermom.org/2023/betsy-larrabee - A new Costco opened by… Continue reading Nutella flavored medical debt.
Category: General Cancer
Easter bunny and doorbells.
Here is your daily reminder to vote for me: http://thesupermom.org/2023/betsy-larrabee And if you aren't sure what that means, you can review yesterday blog post here. You can vote *every day* through April 13th. Do work. I have a long to-do list today so there is no time to ramble. I would like to tell you… Continue reading Easter bunny and doorbells.
Family Meeting, Vote for me.
Ok, family meeting. TLDR (Too long, didn't read): I need you to vote for me to win a contest. Vote below. http://thesupermom.org/2023/betsy-larrabee Or read on for more details because how random is that? We have some items on the agenda. Before we properly begin... hi. It's been a hot minute. And by a hot minute,… Continue reading Family Meeting, Vote for me.
HuCAR T: 18 month follow-up- Living Jude’s Best Life.
Jude watches out the window as the plane gains speed for take-off. "Beau! Beau!" he grabs his arm, "We are about to lift off!" "I know, Jude, I have done this before," Beau says tenderly, but he turns and smiles at me. I told Beau last night that Jude was going to be excited, and… Continue reading HuCAR T: 18 month follow-up- Living Jude’s Best Life.
Lemonade & Paparazzi
Our mission is to change the lives of children with cancer through funding impactful research, raising awareness, supporting families and empowering everyone to help cure childhood cancer. Alex's Lemonade Stand Foundation Last fall, after our 11th or so flight to Philadelphia, I went to book another round-trip ticket for our upcoming appointment. $749. Yikes. There has… Continue reading Lemonade & Paparazzi
Long-Term Follow-up and a new companion
I debated on that title for hours. I mean, the audacity to consider putting that in print. I reminded myself I can always go back and edit it and so I finally just hit, "publish". This blog is more of a place holder than a printing press, I remind myself over and over. So fine,… Continue reading Long-Term Follow-up and a new companion
Dear Zach. An Update on Beau (& Jude)
Once every six months, or so, I write a letter to the Fellow that Beaudin had during the first 2 years of his treatment. The Fellow moved on from our hospital around when Beaudin began his trial at CHOP. Below is an embellished version of my recent correspondence. I sent a fraction of what is… Continue reading Dear Zach. An Update on Beau (& Jude)
Our Christmas Baby
Jude was born on December 25th and it seems we are forever trying to make-up for the short end of that stick. Of all the kids, why did our middle, who already has the greatest chip on his birth order shoulder, get the worst birthday too? We always buy him separate gifts, as advised by… Continue reading Our Christmas Baby
Flying Mouse- Special Delivery
Torben Khulmann is an author and illustrator who Jude and I came across last year and have fallen in love with. He writes historical fiction about a mouse that makes discoveries just ahead of the inventors that history teaches us about. Edison, Lindbergh, Armstrong, to name a few, had their ways paved by a little… Continue reading Flying Mouse- Special Delivery
A bad virus, there is so much going around.
We've been sick since October. I thought maybe I would throw that out as hyperbole, but then I reviewed my last couple posts and, my God, it has, in fact, been virus on top of virus. I suppose the same can be said for most of you. I've seen the headlines, 'We’re living in virus… Continue reading A bad virus, there is so much going around.
The Heavy Wait 