Dear Zach. An Update on Beau (& Jude)

Once every six months, or so, I write a letter to the Fellow that Beaudin had during the first 2 years of his treatment. The Fellow moved on from our hospital around when Beaudin began his trial at CHOP. Below is an embellished version of my recent correspondence. I sent a fraction of what is… Continue reading Dear Zach. An Update on Beau (& Jude)

The Well-Adjusted Sibling- Part 1

The last time Selah was at the Children's Hospital, she was pulling on every single cord connected to Beaudin's cancer ridden body while the doctor told us that they had finally confirmed it was, in fact, leukemia. She was still nursing and we had been having a grandparent deliver her to the hospital a couple… Continue reading The Well-Adjusted Sibling- Part 1

Only if we help, shall all be saved

Only if we understand, will we care.Only if we care, will we help.Only if we help, shall all be saved.-Jane Goodall A couple of notes for the reader: The Emily Whitehead Foundation was founded in honor of Emily Whitehead, the first pediatric CAR T-cell therapy patient. This Emily, referred to as simply “Emily," is not… Continue reading Only if we help, shall all be saved

It’s hard to convey, a CAR T essay

Today the kids are back at school. Every last one of them. Praise Be. If you've been here a minute you know that we have been here, there, and everywhere as far as school goes. Starting at one school, leaving because of mold, homeschooling, then relapsing and falling into the gracious hands of our local… Continue reading It’s hard to convey, a CAR T essay