You guys out there? You still voting? Honestly, how much longer will this last... well, the email they sent me states that I need to be available end of July for the trip to Palm Springs. Palm Springs in dead of summer. Ohhhh Kayyyy. Hope there's a pool. http://thesupermom.org/2023/betsy-larrabee - A new Costco opened by… Continue reading Nutella flavored medical debt.
Category: CAR-T Therapy
Whispering and Times Tables.
I’m backkkkkkkkk. (And a bit all over the place might I say.) You guys, I made it to the, well, what is it now? 483rd round of SuperMom? Honestly, I don’t even know. But now they are calling it the Quarter Finals and I think that actually means something because I dropped from my long-standing… Continue reading Whispering and Times Tables.
11 on the 11th.
Today is Beaudin's birthday! Huzzah! Also, only two more days to vote for me (and two more days until MY birthday!) http://thesupermom.org/2023/betsy-larrabee Ok, back to the birthday: I suppose once you think your kid may die, birthday's always hit a little different. The birthday after he was diagnosed, April 2019, I felt pretty good about… Continue reading 11 on the 11th.
Family Meeting, Vote for me.
Ok, family meeting. TLDR (Too long, didn't read): I need you to vote for me to win a contest. Vote below. http://thesupermom.org/2023/betsy-larrabee Or read on for more details because how random is that? We have some items on the agenda. Before we properly begin... hi. It's been a hot minute. And by a hot minute,… Continue reading Family Meeting, Vote for me.
HuCAR T: 18 month follow-up- Half Truths and Tug of War.
I wake-up early and sneak out of the dark hotel room. I make my way to the lobby to enjoy the complimentary coffee and read my book. If I position myself just right on the couch in the far corner I can be surrounded so completely with eclectic decor that I almost forget why I… Continue reading HuCAR T: 18 month follow-up- Half Truths and Tug of War.
HuCAR T: 18 month follow-up- Living Jude’s Best Life.
Jude watches out the window as the plane gains speed for take-off. "Beau! Beau!" he grabs his arm, "We are about to lift off!" "I know, Jude, I have done this before," Beau says tenderly, but he turns and smiles at me. I told Beau last night that Jude was going to be excited, and… Continue reading HuCAR T: 18 month follow-up- Living Jude’s Best Life.
Lemonade & Paparazzi
Our mission is to change the lives of children with cancer through funding impactful research, raising awareness, supporting families and empowering everyone to help cure childhood cancer. Alex's Lemonade Stand Foundation Last fall, after our 11th or so flight to Philadelphia, I went to book another round-trip ticket for our upcoming appointment. $749. Yikes. There has… Continue reading Lemonade & Paparazzi
for now, we aren’t running.
We went to bed on Wednesday night resting easy. The news from our last visit was slowly starting to settle. We got the initial results the day of the appointment, but the official "all-clear" came the next afternoon, once I had emailed a casual, freaking out on the inside, email to our team and asked,… Continue reading for now, we aren’t running.
Clear. Colorless. Beautiful Champagne Poke.
Jude woke-up for the first time in weeks without complaint that it was morning. I laid down next to him and showed him the two small, wooden ram figurines that my friend had gifted me after relapse. "These little guys are you and Beau. You are vicious killers," I knocked the rams horns against each… Continue reading Clear. Colorless. Beautiful Champagne Poke.
For today, an LP.
Beau is going to have an LP (lumbar puncture) this morning to sample his spinal fluid for rogue cells. I know, I know. It feels out of no where with all the "New companion!" excitement of my last post. I just had to let the ideas stand alone. Beau is in Long-term follow-up and Jude… Continue reading For today, an LP.
The Heavy Wait 