Long-Term Maintenance

Long-Term Maintenance (LTM) is the final treatment phase for Acute Lymphoblastic Leukemia (A.L.L.), lasting 56 days, baring any holds.

This is based on the COG9032 standard of care as adopted by the international body, Children’s Oncology Group (COG) that our son followed from Jan 2019- November 2020.

Posts specific to Long-Term Maintenance (LTM) :

We have worked [518 days] without an accident.

*I gave pause before publishing a post with such profanity, but it’d be inaccurate any other way….* For 518 days we have avoided the curious toddler from getting in to the slew of dangerous medical items passing in and out…

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Privacy concerns.

I have a post that I can’t finish. Part of the reason is that I don’t know what else to say, but I know it is not complete. It just hangs there with more to be said and no words…

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Integrative Choices Part 1: Food

There are a million and one different ways to help support your child’s body while experiencing Leukemia. Ranging from fleeing to Mexico and finding a holistic cancer clinic to indulging on hospital cafeteria milkshakes at every appointment, the choices are…

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Here’s to less weight in 2020!

If you want to loose weight this year, I’m with you. I know. It’s so uncouth. The Body Positivity and Female Empowerment movements would have my head. It’s not about weight! Love the skin your in! I’ve seen social media…

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What Leukemia looks like now: Day 287 Part One

Today Beaudin is 287 days post-diagnosis. He has 508 days until the end of his treatment and 1,204 days before the medical model will consider him “cured”, 5 years post diagnosis. He is on day 43 of his first cycle…

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A walk in the wind.

Yesterday it was windy. And I hate the wind, bc that’s what normal people do. And so naturally I just wanted to stay inside, let the kids watch t.v., or whatever needed to happen so that I could be productive…

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Authentic Affection

“Beau, I’ll give you $1 if when you see Miley, you give her a high five.” At this point, I am not beyond bribery. I knew that our instagram friends would be at clinic, and although I get to see…

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The lab is open 24 hours.

Its been a busy couple of weeks in the Larrabee household and by busy I mean normal, and by normal I mean we survived our first seasonal illness. Last night was the first night that all parties have slept straight…

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The end of the beginning

or the beginning of the end? I’m not sure. All I know is that this week, Beaudin began maintenance therapy for acute lymphoblastic leukemia. For him, maintenance is made-up of 12 week cycles. Each cycle, commences with a intrathecal dose…

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Her 20,000 to our 25.

In the days after Beau’s diagnosis, Josh and I would deliver a laundry list of questions and clarifications to the doctors when they came by our hospital room on their daily rounds. One day in particular, Josh asked about the…

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