Practical guidance for the early days of a childhood leukemia diagnosis.
A clear, parent-centered look at CAR T-cell therapy.
Personal writing and reflections beyond science and timelines.
Recent Posts
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At a 60-month CAR-T follow-up visit, survivorship comes into focus. Clear labs are good news, but knee pain raises the quiet realities of long-term chemotherapy side effects.
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Last week Beaudin and I traveled to CHOP in Philadelphia for his 60-month post HuCAR T-cell follow-up. Here at home, little of our daily life is entrenched in the bone-deep survival that cancer once held. To be clear, it is…
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A parent perspective on trial medicine, care team transitions, and why family remains the central source of continuity in pediatric treatment.
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A reflective look at Of Medicine and Miracles, a documentary exploring the development of CAR T-cell therapy and what its long, uncertain path means for families considering CAR T treatment today.
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A simple, practical gift for someone newly diagnosed with cancer—no platitudes, no inspiration. Just a thoughtful combination of items that make long days and longer nights a little more tolerable.
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A cancer diagnosis changes the way language lands. Suddenly, words meant to comfort feel hollow, advice feels sharp, and even hope can feel entirely too loud. When Beau was diagnosed, I found myself unable to listen to my favorite music,…
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When your child is newly diagnosed with cancer, information comes at you in a way that doesn’t match the moment you’re in. Everything feels like a dream you haven’t woken up from and then someone you don’t really know—but also…
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This is post was originally published in 2022. I looked out the window as the plan began to descend along the Schuylkill. We were now 1 year out from HuCAR T-cell therapy. A timeline that would allow us to stop…
About
Hi, I’m Betsy. I’m a cancer mom who’s navigated grief, logistics, hope, and everything in between. This site exists because I needed it once — and maybe you do too.
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Thoughtful, lived-experience storytelling centered on pediatric cancer survivorship and the human side of modern medicine.
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Recent Posts
- HuCAR T: Month 60 Part 2: Growing Pains
- HuCAR T: Month 60- Part 1: Everything is different, but nothing has changed.
- When Trial Medicine means redefining family
- Of Medicine and Miracles: A Documentary About CAR T Therapy
- A “Sorry This Sucks” Gift for the Newly Diagnosed with Cancer
- 5 Books I’d Give to Anyone Facing a Cancer Diagnosis
- You are putting what, where? Central Lines, Explained
- Alive in Philadelphia, HuCAR T-1 year follow-up