This weekend we attended the Believe Ball put on by the Emily Whitehead Foundation (EWF). As I have mentioned in previous posts, the EWF is a large part of why we were able to get Beaudin connected with CAR T therapy as a path through relapse. I suppose I shouldn't say it's the only reason,… Continue reading Believe Ball 2022
Category: Relapse
Rebuilding & reckoning: where to go from here
Sometimes, well most of the time, I start writing exactly where I left off. And by left off, I mean left off of the train of thought in my own head. How is it all you keep up? Alas, you keep coming back. Or something. I don't even know how many of you come back.… Continue reading Rebuilding & reckoning: where to go from here
Verified.
We have to get Beaudin a COVID test for his procedures at CHOP. The procedures can happen, positive or not, but if he is positive they have to provide a negative pressure room which is in a different part of the hospital. Normally, we go to Walgreens the day before our flight. But today when… Continue reading Verified.
Doing the Damn Thing.
We are back from our one-month Pacific Northwest extravaganza. It was everything we hoped it would be, probably more. But above all the hyperbole, it was truly the break we needed. It was the first time in, well, 3.5 years, when the time I spent thinking about cancer was less than the time I didn't… Continue reading Doing the Damn Thing.
Dear Beau, on the day of your port removal,
Dear Beau, Last night you scored the winning run of your baseball game. I cried hot tears as you ran across home plate and into the dugout where your teammates… Continue reading Dear Beau, on the day of your port removal,
Beau’s cancer story
A overview of Beadin's cancer journey for new readers.
Same Island, Less Denial
Our trip to Captiva, November 2021. Denial Island hit different this year. Last year we packed up and fled to denial island days after hearing that Beau had most likely… Continue reading Same Island, Less Denial
The dentist and the ram.
I hadn't expected to cry while cooking up lunch yesterday. I guess if I am honest the feeling, the hot tears, are always only a couple of thoughts away. Like… Continue reading The dentist and the ram.
A supportive kitchen floor and a shopping spree.
After posting my dark room post a dear cancer mama friend asked how I was doing with the one year anniversary of Beau's relapse coming up. At the moment, fresh… Continue reading A supportive kitchen floor and a shopping spree.
Canaries in September.
Each September the info graphics start flooding my Facebook feed. As though they finally have an excuse to scream these statistics at the top of their lungs, all my cancer… Continue reading Canaries in September.
The Heavy Wait 