I always have big intentions to come to Philly and in all my "spare time" do so much blogging/writing that I finally feel caught up. But as it would turn out, I will never feel caught up. I could write every day for the rest of forever and still feel like there is more to… Continue reading HuCART Boost Day 4: a whole lot of nothing
Category: HuCART Boost
HuCART Boost- Pre-chemo Part 2
Part 1 can be found here. My mind feels foggy. Like I have a hyper focus on the smallest of details, and yet the inability to focus on anything. I turn on the tv and watch endlessly while I can't connect with caring about anything that I see. Should I change the channel? Meh. Apathy.… Continue reading HuCART Boost- Pre-chemo Part 2
HuCART Boost- Pre-chemo Part 1
Part 2 can be found here. Here we are again, back in the city of brotherly love. To be honest, it always feels a little bit like coming home when we arrive in Philly. The body finding it's ways inside of sustained trauma. It looks for comforts and familiarities. Our plane lands in Philly and… Continue reading HuCART Boost- Pre-chemo Part 1
HuCART Day+129: January in Philly
This week at Beaudin's lab check, his b-cells were at 6%, up from 2.7% last week. So, we return to Philly. We boost. All January plans, flipped on their head. Doing something comes more freely to my spirit than waiting and as such when we saw the 6% results it felt a seamless transition into… Continue reading HuCART Day+129: January in Philly
HuCART Day +119: 2.7% b-cell return
An update. Beau had clinic on Tuesday. Unfortunately, his labs showed a b-cell return of 2.7%. This may indicate his t-cells are fading, but it is not considered an “official return” until b-cells return at >3%. B-cells levels have been known, in rare cases, to fluctuate and go back down so we are going to… Continue reading HuCART Day +119: 2.7% b-cell return