A Mother’s Day for the Cancer Mom- Guest post by Jen Hershberger.

We hear “you are so brave,” “you are so strong,” but sometimes we are not.  We cry.  We breakdown. We are racked with fear, anxiety, doubt and terrible thoughts. It’s hard to listen to accolades of our strengths that we did not choose to demonstrate.  They came about from the necessity of our child’s painContinue reading “A Mother’s Day for the Cancer Mom- Guest post by Jen Hershberger.”

“Sorry,” is the first step, then “how can I help?”

Unfortunately, in the last couple months two acquaintances have reached out with the same question, “Someone close to me has just found out their child has leukemia. What do I do? What do I say? How can I support them?” This is what you can do. Establish Rank & File Understand who the front lineContinue reading ““Sorry,” is the first step, then “how can I help?””

God willing. This is the end.

In January we celebrated Selah’s birthday at her Waldorf preschool. I was invited to watch the ceremony and as soon as I walked in and saw her, I was choked up. She was adorned with a crown and cape and invited to circle round a centerpiece of candles as we all sang (to the tuneContinue reading “God willing. This is the end.”

Integrative Choices Part 1: Food

There are a million and one different ways to help support your child’s body while experiencing Leukemia. Ranging from fleeing to Mexico and finding a holistic cancer clinic to indulging on hospital cafeteria milkshakes at every appointment, the choices are vast. You can also spend hours, upon hours, (upon hours) reading the literature on theContinue reading “Integrative Choices Part 1: Food”

For the fear of needles.

During December of 2018 and into early January, prior to diagnosis, before we knew what the hell this was, Beaudin had to give a lot of blood samples. Daily cultures, daily labs, tests to send to Clevland, to Mayo. Was it Epstien-Barr, AIDS, “just the flu”? He had over 30 blood draws and/or IV placements.Continue reading “For the fear of needles.”

To the mom who is about to hear, "It's cancer."

There is so much I want to tell you. And really, I don’t know exactly where to begin. So, like I’ll encourage you from here on out, I am going to just take the next step. Things are about to get hard. Real hard. Like can’t breath, might throw-up, haven’t eaten nor slept in aContinue reading “To the mom who is about to hear, "It's cancer."”

Explanation of ALL and COG9032

**since Beau’s diagnosis in January of 2019, the COG9032 protocol has changed and been updated. Current treatment for standard-risk ALL has similar bones, but is not the same. Obviously, duh, rely on what your team says, not me.** Many children around the world are treated for Leukemia following the Children’s Oncology Group (COG) guidelines fromContinue reading “Explanation of ALL and COG9032”