I have locked myself in my room. I have one million things to do and by "one million," I mean to say that I have four things that I actually need to do, and 999,996 other things that feel like a great way to occupy myself while I run around my house screaming, "I have… Continue reading A new nanny and a week of illness.
Category: Daily Dose
Daily Dose: April 4th, 2021
Waiting for a CarT reaction, mild fever, mild headache, and a softball game.
Daily Dose: March 28th, 2021
What we did this weekend and a thank-you!
Daily Dose: March 25th, 2021
There feels like so much to write and yet nothing to say. I've tried to write this update a couple times and find myself all over the place. There is a lot happening on the schedule and even more emotionally. I want to capture it all. Things have been very busy here. We hit the… Continue reading Daily Dose: March 25th, 2021
Snail mail & gift cards
We are gearing up for our time in Philadelphia. And are really excited to get this show on the road! Many of you have asked if you can send us a care package, or offer other support during our time away from home. If you had asked me two years ago I probably would have… Continue reading Snail mail & gift cards
Daily Dose: March 16, 2021
In January the boys started attending a local public school. I keep meaning to write on that, update the masses about our pivot from homeschool to public school, but haven't yet. So I will dive right in here to detail how well things are going. Both boys have teachers that are saints. Jude's teacher actually… Continue reading Daily Dose: March 16, 2021
Daily Dose: February 27th, 2021
Dates for CarT in Philly. Who is coming, who is staying, and why I can't stop, won't stop writing first drafts.
Daily Dose: February 10th, 2021
Back at clinic in Colorado after signing on to the CHOP study. Maintenance chemo and a bit of crying to the doctor.
Daily Dose: January 21, 2021
Exciting update on Car T treatment, and 2021 being the year that this all ends.
Daily Dose: January 7th, 2021
Update on T cell apheresis day at Children's Colorado.
The Heavy Wait 