summerofsilence

Only if we help, shall all be saved

Only if we understand, will we care.Only if we care, will we help.Only if we help, shall all be saved.-Jane… Continue reading Only if we help, shall all be saved

Beaudin and I waited in line to meet Dr. June. He is one of the brilliant doctors behind CAR T… Continue reading Beaudin L. #1

I waited until three days before we left for Philly to come to terms with the fact that I would… Continue reading Preparing for a Ball

This weekend we attended the Believe Ball put on by the Emily Whitehead Foundation (EWF). As I have mentioned in… Continue reading Believe Ball 2022

Sometimes, well most of the time, I start writing exactly where I left off. And by left off, I mean… Continue reading Rebuilding & reckoning: where to go from here

Sweet Emily, Part One I keep meaning to write about it. The composition swirling around in my head every time… Continue reading Intoxicating Trauma

Today the kids are back at school. Every last one of them. Praise Be. If you've been here a minute… Continue reading It’s hard to convey, a CAR T essay

It has been over 500 days since the last time there was measurable cancer in Beaudin's body. So why doesn't… Continue reading HuCART: Month 12 Results

This weekend Selah sat outside all afternoon, playing with her new water beads and was eaten up by mosquitos. I… Continue reading Mozzies

We have to get Beaudin a COVID test for his procedures at CHOP. The procedures can happen, positive or not,… Continue reading Verified.