CarT Therapy

Beaudin completed Car T Therapy at Children’s Hospital of Philadelphia in March 2021. Unfortunately the t-cells did not persist. Although he is “cancer free” with immeasurable cancer in all prognostics testing, because of the lack of persistence, the team felt more treatment was needed to ensure a forever remission.

In August 2021, Beaudin returned to Philadelphia for a Humanized Car T trial.

You can read about Car T therapy here and Humanized Car T therapy here.

Our updates from all of the Car T therapy can be found below.

HuCART: Month 9 results

Earlier this month Beaudin and I traveled to CHOP for his 9-month post HuCART testing. It’s been impossible to write about. Not because the trip to Philly was that out of the ordinary, but because the weeks leading up to

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A birthday doctor’s call

I hadn’t thought through that it would be his birthday when I confirmed the phone call with her. I guess when your son’s doctor says they need to speak to you, you don’t exactly “look at your calendar,” you just

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HuCART: Month 6 results Part 1

*unedited, sorry for typo’s* Part 1- LP results On Tuesday Beaudin had his 6-month, post HuCART procedures. As you’ll recall, his b-cells retuned in late December and despite returning to Philly and doing a boost in January, continued to come

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Results and a podcast!

Well. The boost didn’t work. I suppose there is a more poetic way to say it, but I mean, are we not just about over trying to make a story out of this slog? Oh, just me? Ok, fine, I’m

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Empathy once desensitized

I did the thing. The thing people do when they’ve become medically desensitized to pediatric cancer. The thing that when you are freshly diagnosed feels like something you would never, ever, be capable of because there is no way that

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Home again, Home again.

Beaudin and I arrived home late last week and we are SOOOO GLAD TO BE HOME. Pardon while I shout it from the rooftops. Nothing like a couple solitary weeks in Philly to make you come home and drink in

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HuCART Day +119: 2.7% b-cell return

An update. Beau had clinic on Tuesday. Unfortunately, his labs showed a b-cell return of 2.7%. This may indicate his t-cells are fading, but it is not considered an “official return” until b-cells return at >3%. B-cells levels have been

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HuCART: Month 3 results.

It’s all clear. All good. All what we want. No leukemia in his spinal fluid. No leukemia in his bone marrow. No b-cells in either. No leukemia in the MRD (minimal residual disease). Next Gen Sequence is still outstanding but

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Seasonal Jammies & Month 2 Results

Thanks for indulging my creative side with my last post. Such different content than the cancer side of things, so different in fact that I felt immediate shame about creating and posting it. What business do I have being carefree

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Currently: October

Please enjoy this break in dreary cancer content while I review the most *basic* fall month on record. Praise be that I have almost nothing to report, except my out of proportion joy at the simple things we have been

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HuCART Day +28 results

On Day 28, Beau had a bone marrow biopsy and a lumbar puncture. These tests yield 4 test results: 1.) Review of cells in spinal fluid. 2.) Review of cells in bone marrow. a. Reviewed by pathologist under a microscope.

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And so we begin again. HuCarT Day -7

Dear Beau, All your friend’s parents are posting first day of school pictures. I was thinking of taking a picture of you leaving this morning. I imagined having you hold a chalkboard sign that read “Back to Chemo.” Instead you

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Road Rage

To the guy who flipped me off merging on to the toll road this morning,  I’m sorry that I wasn’t paying close attention to the merging lanes. You’d think after driving this route, this many times, that I’d know the

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Car T Day +58: B-cell Return

Hi all, wanted to update, but haven’t had the words or energy to put in to a full post. But after a couple of personal texts about results I thought I would just post this real quick. Beaudin’s b-cells are

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Philly Magic Gardens

Philadelphia’s Magic Gardens (PMG) is an immersive mixed media art environment, a space that is completely covered with mosaics. It was created by artist Isaiah Zagar who used handmade tiles, bottles, bicycle wheels, mirror, and international folk art. He used

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Survival rates and percentage math.

When your child is diagnosed with acute lymphoblastic leukemia you hear that it’s the “good” cancer in that it’s EFS (event free survival) is upwards of 94%. And that helps you find some footing in the sinking sand because in

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CAR T Day +5: Fever watch

Fever update: Man, watching a fever rise/fall/hold is something I will NOT miss about this circus. Of all the stresses of cancer, the waiting for symptoms to progress is a real drain. It feels like an extended fight or flight

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CAR T Day +3: IVIG and waiting

Medical update: Last week, Beaudin received 4 days of high dose chemotherapy to kill off his healthy B-cells in order to make room for his new T-cells. He was tired, but not overly so. His appetite diminished, but really, I

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Daily Dose: March 25th, 2021

There feels like so much to write and yet nothing to say. I’ve tried to write this update a couple times and find myself all over the place. There is a lot happening on the schedule and even more emotionally.

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Daily Dose: March 16, 2021

In January the boys started attending a local public school. I keep meaning to write on that, update the masses about our pivot from homeschool to public school, but haven’t yet. So I will dive right in here to detail

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