Last week Beaudin had his t-cell apheresis completed locally at our hospital in Denver. Beau had his cell collected. He rocked it. He said the PowerWand line placement was a 2 on the 1-10 pain scale. Which says a lot about how damn brave he is, and also a lot about how lucky we are… Continue reading Three doctors walk into a bar: second T-cell collection
When your child is diagnosed with acute lymphoblastic leukemia you hear that it's the "good" cancer in that it's EFS (event free survival) is upwards of 94%. And that helps you find some footing in the sinking sand because in what world could you fall in to that 6% of kids. You already got the… Continue reading Survival rates and percentage math.
Unfortunately, in the last couple months two acquaintances have reached out with the same question, "Someone close to me has just found out their child has leukemia. What do I do? What do I say? How can I support them?" This is what you can do. Establish Rank & File Understand who the front line… Continue reading “Sorry,” is the first step, then “how can I help?”
Dear Beau, When you were diagnosed, one of my biggest worries, for us both, was your fear of needles. You had so much fear over them that even the most simple blood draw would require many adults holding your body against your will. Actually, I recall a moment early-on, one of the first times we… Continue reading Dear Beau, on the day of your last L.P.
In January we celebrated Selah's birthday at her Waldorf preschool. I was invited to watch the ceremony and as soon as I walked in and saw her, I was choked up. She was adorned with a crown and cape and invited to circle round a centerpiece of candles as we all sang (to the tune… Continue reading God willing. This is the end.
Dates for CarT in Philly. Who is coming, who is staying, and why I can't stop, won't stop writing first drafts.
How is it that treatment was meant to end and now CarT cell therapy begins on the exact same day? Read more.
Exciting update on Car T treatment, and 2021 being the year that this all ends.
Update on T cell apheresis day at Children's Colorado.
Consultations and baseline measurements for the upcoming t-cell collection. A long, long hospital day.