In January we celebrated Selah's birthday at her Waldorf preschool. I was invited to watch the ceremony and as soon as I walked in and saw her, I was choked up. She was adorned with a crown and cape and invited to circle round a centerpiece of candles as we all sang (to the tune… Continue reading God willing. This is the end.
Category: Leukemia
Daily Dose: February 27th, 2021
Dates for CarT in Philly. Who is coming, who is staying, and why I can't stop, won't stop writing first drafts.
March 22, 2021. It remains.
How is it that treatment was meant to end and now CarT cell therapy begins on the exact same day? Read more.
Daily Dose: February 10th, 2021
Back at clinic in Colorado after signing on to the CHOP study. Maintenance chemo and a bit of crying to the doctor.
48 hours in Philadelphia- Part one
Recap of the 48 hours trip to Philadelphia to sign consent paperwork for the CarT trial.
Daily Dose: January 21, 2021
Exciting update on Car T treatment, and 2021 being the year that this all ends.
A mom’s understanding of CAR T Cell Therapy.
A high-level overview of CarT therapy from a mother's perspective.
Daily Dose: January 7th, 2021
Update on T cell apheresis day at Children's Colorado.
Daily Dose: January 5, 2021
Consultations and baseline measurements for the upcoming t-cell collection. A long, long hospital day.
Daily Dose: January 4th, 2021
Update 1/4/21- Apheresis team consult and vein discovery and lots of unapproved snacks.
The Heavy Wait 