In January we celebrated Selah's birthday at her Waldorf preschool. I was invited to watch the ceremony and as soon as I walked in and saw her, I was choked up. She was adorned with a crown and cape and invited to circle round a centerpiece of candles as we all sang (to the tune… Continue reading God willing. This is the end.
Dates for CarT in Philly. Who is coming, who is staying, and why I can't stop, won't stop writing first drafts.
How is it that treatment was meant to end and now CarT cell therapy begins on the exact same day? Read more.
Back at clinic in Colorado after signing on to the CHOP study. Maintenance chemo and a bit of crying to the doctor.
Recap of the 48 hours trip to Philadelphia to sign consent paperwork for the CarT trial.
Exciting update on Car T treatment, and 2021 being the year that this all ends.
A high-level overview of CarT therapy from a mother's perspective.
Update on T cell apheresis day at Children's Colorado.
Consultations and baseline measurements for the upcoming t-cell collection. A long, long hospital day.
Update 1/4/21- Apheresis team consult and vein discovery and lots of unapproved snacks.