I did the thing. The thing people do when they’ve become medically desensitized to pediatric cancer. The thing that when you are freshly diagnosed feels like something you would never, ever, be capable of because there is no way that any of this will ever feel normal. But after your child has had so many… Continue reading Empathy once desensitized
Each September the info graphics start flooding my Facebook feed. As though they finally have an excuse to scream these statistics at the top of their lungs, all my cancer mom friends fill their pages with data on childhood cancer that everyone needs to know. I'm looking at you Jess McKearney, you have brought some… Continue reading Canaries in September.
Yesterday we left for the hospital at 7:08am and arrived back into our garage, after an unexpectedly long day, around 6:11pm. As it turns out, chemotherapy melts tooth enamel, how unfortunate. If you couple that with children's already thin enamel, you are primed and ready for cavities galore. We knew Beau had a handful of… Continue reading A long day at the hospital (dental work)
To the guy who flipped me off merging on to the toll road this morning, I’m sorry that I wasn’t paying close attention to the merging lanes. You’d think after driving this route, this many times, that I’d know the lanes merge together immedeatly after we cross over the bypass. As we leave the hustle… Continue reading Road Rage
Read part one here. Less than 48-hours we were back in Denver and my mom was driving us home from the airport. I checked the MyChart app to see if Beaudin's blood/lab results had posted. When I opened the app I saw a notification for new labs. I clicked on it and saw: "CSF cell… Continue reading 3 month post CAR T check-up: A Quick Trip to Philly- Part Two
When I was in college I spent a lot to time doing the following: Partying, being hungover, and helping my grandma. I know, I know, one of these things is not like the others, but that was me. I partied hard, like real hard, like probably too hard. And I could often be found at… Continue reading Vic Gulas and Gram
I have locked myself in my room. I have one million things to do and by "one million," I mean to say that I have four things that I actually need to do, and 999,996 other things that feel like a great way to occupy myself while I run around my house screaming, "I have… Continue reading A new nanny and a week of illness.
We hear “you are so brave,” “you are so strong,” but sometimes we are not. We cry. We breakdown. We are racked with fear, anxiety, doubt and terrible thoughts. It’s hard to listen to accolades of our strengths that we did not choose to demonstrate. They came about from the necessity of our child’s pain… Continue reading A Mother’s Day for the Cancer Mom- Guest post by Jen Hershberger.
Unfortunately, in the last couple months two acquaintances have reached out with the same question, "Someone close to me has just found out their child has leukemia. What do I do? What do I say? How can I support them?" This is what you can do. Establish Rank & File Understand who the front line… Continue reading “Sorry,” is the first step, then “how can I help?”
Dear Beau, When you were diagnosed, one of my biggest worries, for us both, was your fear of needles. You had so much fear over them that even the most simple blood draw would require many adults holding your body against your will. Actually, I recall a moment early-on, one of the first times we… Continue reading Dear Beau, on the day of your last L.P.