Today the kids are back at school. Every last one of them. Praise Be. If you've been here a minute you know that we have been here, there, and everywhere as far as school goes. Starting at one school, leaving because of mold, homeschooling, then relapsing and falling into the gracious hands of our local… Continue reading It’s hard to convey, a CAR T essay
It has been over 500 days since the last time there was measurable cancer in Beaudin's body. So why doesn't it feel like butterflies and rainbows to say that he remains cancer free? Trauma, that's why. Last week I was checking out at Whole Foods when I saw the Philly area-code pop onto my screen.… Continue reading HuCART: Month 12 Results
This weekend Selah sat outside all afternoon, playing with her new water beads and was eaten up by mosquitos. I would say "eaten alive," but I said that in front of her later that evening when showing the bites to Joshua and she was quite take aback by the mental image. She's got the genetics… Continue reading Mozzies
We have to get Beaudin a COVID test for his procedures at CHOP. The procedures can happen, positive or not, but if he is positive they have to provide a negative pressure room which is in a different part of the hospital. Normally, we go to Walgreens the day before our flight. But today when… Continue reading Verified.
The other night over dinner a girl friend and I listened while our friend, Sarah, recounted a scary medical thing that had happened with her young daughter earlier that day. Both her daughters, now 9 and 7 years old, did this thing when they were toddlers where any time they were crying, like really wailing,… Continue reading Every Damn Day
We are back from our one-month Pacific Northwest extravaganza. It was everything we hoped it would be, probably more. But above all the hyperbole, it was truly the break we needed. It was the first time in, well, 3.5 years, when the time I spent thinking about cancer was less than the time I didn't… Continue reading Doing the Damn Thing.
It was July 2008. We were young and wild. We stayed past semester end to travel the Adriatic coast, the world our oyster. We debated a tattoo to consecrate the summer that was slipping away. We wandered down the river in Vienna one evening and, quite literally, stumbled into a music festival. "Leben jetzt und… Continue reading Leben jetzt und hier
The day Beaudin had his port put in, January 19th, 2019 a fellow met us in the surgery waiting room and asked if we would be willing to sign Beau on for a study that was seeking to understand the effects of methotrexate on kidney function. All we had to do was sign the last… Continue reading Chemical Sleep and Bon Voyage
Dear Beau, Last night you scored the winning run of your baseball game. I cried hot tears as you ran across home plate and into the dugout where your teammates… Continue reading Dear Beau, on the day of your port removal,
Earlier this month Beaudin and I traveled to CHOP for his 9-month post HuCART testing. It's been impossible to write about. Not because the trip to Philly was that out… Continue reading HuCART: Month 9 results