Catch up on Part 1 here. Jude didn't want to be alone while he was in and out of throwing up. He was scared. Joshua and I took turns laying with him and assuring him he was going to be ok. At one point, laying on the bathroom floor he kept asking a lot of… Continue reading HuCART: Month 6 results Part 2
Category: HuCarT
HuCART: Month 6 results Part 1
*unedited, sorry for typo's* Part 1- LP results On Tuesday Beaudin had his 6-month, post HuCART procedures. As you'll recall, his b-cells retuned in late December and despite returning to Philly and doing a boost in January, continued to come back strong. 6-months was technically February 8th, but because we were hoping the boost would… Continue reading HuCART: Month 6 results Part 1
HuCART: 6 month CHOP visit part 2
You can read Part 1 of this update: Here. The benefit of a visit to Philadelphia without any procedures was that we got to have an in-person conversation with the CAR team. We are at a fork in the road, and it felt relieving to make a plan to move forward with us all in… Continue reading HuCART: 6 month CHOP visit part 2
HuCART: 6 month CHOP visit part 1
Part 1 We are back from Philadelphia with everything and nothing to show for it. We had expected to have Beau's 6 month LP and BMB performed, but the procedure didn't happen because of a cold that he had been brewing for a couple days and seemed to hit it's peak at the exact moment… Continue reading HuCART: 6 month CHOP visit part 1
Beau’s cancer story
A overview of Beadin's cancer journey for new readers.
Results and a podcast!
Well. The boost didn't work. I suppose there is a more poetic way to say it, but I mean, are we not just about over trying to make a story out of this slog? Oh, just me? Ok, fine, I'm not over it. That's hyperbolic. I am just tired, tired of the dark room. In… Continue reading Results and a podcast!
Empathy once desensitized
I did the thing. The thing people do when they’ve become medically desensitized to pediatric cancer. The thing that when you are freshly diagnosed feels like something you would never, ever, be capable of because there is no way that any of this will ever feel normal. But after your child has had so many… Continue reading Empathy once desensitized
Breaking News: [this] creates more mysteries.
There was an interesting news article floating around yesterday that I wanted to share. https://www.nytimes.com/2022/02/02/health/leukemia-car-t-immunotherapy.html The article is a high-level summary, a feel good story, of two patients who received CAR T 10+ years ago, when the treatment was even more in its infancy than it is today. Research began in the adult population, as… Continue reading Breaking News: [this] creates more mysteries.
Home again, Home again.
Beaudin and I arrived home late last week and we are SOOOO GLAD TO BE HOME. Pardon while I shout it from the rooftops. Nothing like a couple solitary weeks in Philly to make you come home and drink in allll the goodness. I walked around the local grocery store yesterday and couldn't get over… Continue reading Home again, Home again.
HuCART Boost Day 4: a whole lot of nothing
I always have big intentions to come to Philly and in all my "spare time" do so much blogging/writing that I finally feel caught up. But as it would turn out, I will never feel caught up. I could write every day for the rest of forever and still feel like there is more to… Continue reading HuCART Boost Day 4: a whole lot of nothing
The Heavy Wait 