I waited until three days before we left for Philly to come to terms with the fact that I would have to find something to wear to my first ever ball. It's one of my worst traits, this specific variety of denial. I despise shopping, DESPISE, so, sure, I had poked around one local store,… Continue reading Preparing for a Ball
Category: HuCarT
Believe Ball 2022
This weekend we attended the Believe Ball put on by the Emily Whitehead Foundation (EWF). As I have mentioned in previous posts, the EWF is a large part of why we were able to get Beaudin connected with CAR T therapy as a path through relapse. I suppose I shouldn't say it's the only reason,… Continue reading Believe Ball 2022
Rebuilding & reckoning: where to go from here
Sometimes, well most of the time, I start writing exactly where I left off. And by left off, I mean left off of the train of thought in my own head. How is it all you keep up? Alas, you keep coming back. Or something. I don't even know how many of you come back.… Continue reading Rebuilding & reckoning: where to go from here
HuCART: Month 12 Results
It has been over 500 days since the last time there was measurable cancer in Beaudin's body. So why doesn't it feel like butterflies and rainbows to say that he remains cancer free? Trauma, that's why. Last week I was checking out at Whole Foods when I saw the Philly area-code pop onto my screen.… Continue reading HuCART: Month 12 Results
Every Damn Day
The other night over dinner a girl friend and I listened while our friend, Sarah, recounted a scary medical thing that had happened with her young daughter earlier that day. Both her daughters, now 9 and 7 years old, did this thing when they were toddlers where any time they were crying, like really wailing,… Continue reading Every Damn Day
Dear Beau, on the day of your port removal,
Dear Beau, Last night you scored the winning run of your baseball game. I cried hot tears as you ran across home plate and into the dugout where your teammates… Continue reading Dear Beau, on the day of your port removal,
HuCART: Month 9 results
Earlier this month Beaudin and I traveled to CHOP for his 9-month post HuCART testing. It's been impossible to write about. Not because the trip to Philly was that out… Continue reading HuCART: Month 9 results
A birthday doctor’s call
I hadn't thought through that it would be his birthday when I confirmed the phone call with her. I guess when your son's doctor says they need to speak to… Continue reading A birthday doctor’s call
Swiftly Kicked in the Stomach
*This is one of many posts that mentions our sweet friend Emily. I have made a separate category for the times I wrote about her. If you would like to… Continue reading Swiftly Kicked in the Stomach
HuCART: Month 6 results Part 2
Catch up on Part 1 here. Jude didn't want to be alone while he was in and out of throwing up. He was scared. Joshua and I took turns laying… Continue reading HuCART: Month 6 results Part 2
The Heavy Wait 