The (well?) adjusted sibling- Part 2

Read Part One here. Feeling pretty damn proud of myself right about now. Why, you ask. Oh, well I just stopped my freefall down the black hole of despair. Clawed my way right out. Closed the tab and opened a new one. You see, yesterday I wrote about Selah visiting the hospital and I was… Continue reading The (well?) adjusted sibling- Part 2

The Well-Adjusted Sibling- Part 1

The last time Selah was at the Children's Hospital, she was pulling on every single cord connected to Beaudin's cancer ridden body while the doctor told us that they had finally confirmed it was, in fact, leukemia. She was still nursing and we had been having a grandparent deliver her to the hospital a couple… Continue reading The Well-Adjusted Sibling- Part 1

Only if we help, shall all be saved

Only if we understand, will we care.Only if we care, will we help.Only if we help, shall all be saved.-Jane Goodall A couple of notes for the reader: The Emily Whitehead Foundation was founded in honor of Emily Whitehead, the first pediatric CAR T-cell therapy patient. This Emily, referred to as simply “Emily," is not… Continue reading Only if we help, shall all be saved

HuCART Day +20: Mini golf and school.

As mentioned in our last update, things were pretty hard for a hot minute. The trauma of it all is not helped by siblings being worried about their brother, and their brother crying for them to "go away" every time they come near. After returning from the hospital Beaudin continued to improve, but wanted things… Continue reading HuCART Day +20: Mini golf and school.

An end of the year “thank-you” note.

This spring I heard a great idea for end of the year teacher gifts. Instead of gifting a coffee gift card or candle, write a letter to the Superintendent and/or principal detailing your gratitude for the teacher. I thought this was just beautiful, but as I brainstormed what I would say about our teachers, I… Continue reading An end of the year “thank-you” note.

We have worked [518 days] without an accident.

For 518 days we have avoided the curious toddler from getting in to the slew of dangerous medical items passing in and out of our house. Vials of blood thinner, injection needles, liquid chemo, pills of steroids, all have passed through our home carefully and escaped the grasps of the toddler. Until the other night.… Continue reading We have worked [518 days] without an accident.