I write about a lot of things, but more often than not it’s pediatric cancer and what it means to hold gratitude and lament in the same clenched fist.

This is the heavy wait. Together it feels lighter. I am glad you are here.

Most Recent Posts:

HuCART: Month 9 results

Earlier this month Beaudin and I traveled to CHOP for his 9-month post HuCART testing. It’s been impossible to write about. Not because the trip to Philly was that out of the ordinary, but because the weeks leading up to…

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Two too many.

In the last two weeks I have received two texts from two families telling me that two new cancer children are in heaven. It’s two too many. The texts read the same. “He is in heaven.” “She is in heaven.”…

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A birthday doctor’s call

I hadn’t thought through that it would be his birthday when I confirmed the phone call with her. I guess when your son’s doctor says they need to speak to you, you don’t exactly “look at your calendar,” you just…

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Swiftly Kicked in the Stomach

*This is one of many posts that mentions our sweet friend Emily. I have made a separate category for the times I wrote about her. If you would like to read more about her, please click on the category “Sweet…

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HuCART: Month 6 results Part 2

Catch up on Part 1 here. Jude didn’t want to be alone while he was in and out of throwing up. He was scared. Joshua and I took turns laying with him and assuring him he was going to be…

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HuCART: Month 6 results Part 1

*unedited, sorry for typo’s* Part 1- LP results On Tuesday Beaudin had his 6-month, post HuCART procedures. As you’ll recall, his b-cells retuned in late December and despite returning to Philly and doing a boost in January, continued to come…

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